Home tonight

I am home...Marshall didn't get up til about 3:15 pm today....took his first shower since Jan. 9th (bless his heart).  He is doing ok..been quiet and obviously sleeping a TON!!!!! I kept having to yell "Marshall....you in pain?"  then i would tell the nurse "Nope, were good" or "Marshall, you need to take your meds....Hey, Marshall......."  I would get a grunt....the nurses would come in and say..."we need to give him meds...but he's sleeping we can come back...."  I was like "you can wake him up...no biggie.....he will just go right back...if he needs them...he needs them..."  Such a mean mom!!!!!

So, the poor kid has crutches, now attached to "peter" and "peter" has to be plugged in......so he slept in the "parent/guest bed" and slept in his.....LOL  he hates the smell of Chemo....there is a smell on the 6th floor...i can even now smell it....i smell the difference from being on the 8th when he recovered from surgery....so, this week i was like....damn....weeeerrrreeee bacccccck.!

so, he needs help everytime he has to go the the bathroom....we plug "peter" right by the bathroom, so all you have to do is pick up all the lines coming from his hickman and make sure you don't roll over them.....as you wheel into the bathroom and let him go...then he will tell you he is done...then you reverse...holding the lines.....praying you don't roll over one of those dripping lines from him and peter....

i think this has hit him hard.  he hasn't eaten, drank really today...slept...he says it's the "BAD" pump...i believe it, but with such a stretch that he had without it...his body got used to no chemo...now it's like....darn it....AGAIN....as we are all saying to ourselves.....

he should be done tomorrow night...chemo should end at 7 pmish....then an hour of flushing and if he has been off the "BAD" pump for two hours then we are good to go.....I won't be there.  I have to work tomorrow afternoon from 2-6 pm. 

different and getting used to it....it's not full time and thank goodness......it was gonna be hard enough to be thrown into the work force with being a mom of 7 kids with one at home....let alone come to find out your oldest has cancer and then out goes whatever your plans were.....LOL  so plan B, C, D, E, F...shall I continue?  nope i wouldn't....not worth it...you get the point.

not complaining....I did have my first week of work last week.  granted i only work 4 hours on tuesday, 4 hours on thursday and 6 on friday...so, no complaints.....it's good and could be worse....brian fills in when i need him...like on tuesday when marshall got called in...i was at work....so when i was done i came home...saw "some" maybe 2 of the kids......LOL packed up and left....then came home tonight after dinner.

what a life....almost over.....we are getting there...i can see the end of the tunnel...now, this tunnel is a different tunnel....but this one will be over with mid june....then we start with scans every 3 months for so many years....come to find out Marshall has to see his surgeon that took out his Ischium bone for 10 years......this is a life long battle for marshall...it's not over...yes, this hard part will be......YES...but he will have to keep up with it....they want to make sure it doesn't come back....that will be my miracle.....it won't come back.....that's all i ask.....it not to come back.....if it comes back that is what kills......so, i pray it won't.....well, got to throw away......garbage, and junk mail, and file bills and such like that...get ready for tomorrow.....